Where are the progressive MS'ers? Is there a lack of interest in slowing or stopping progressive MS?

The response to our call for progressive and other MS'ers to watch this video and complete the survey has been surprisingly poor (14 respondents so far). It makes me wonder about all the complaining progressive MS'ers do in relation to there being no treatments for progressive disease and the lack of research. Without a clear signal from you that you are prepared to have lumbar punctures as part of a clinical trial the less likely we are to be able to test this study design, which I think is very innovative.




In addition, it is an output of the Promise 2010 programme. Many of you complained that this programme did not deliver on its promise. I disagree! The Promise 2010 programme was a partnership between MS researchers and MS'ers; we need you to help translate the insights from the programme.

If you are willing to help can you please watch the video above before completing the survey
; questions in the survey relate to issues presented in the video: MS LP Survey.

Thank you.